June 15, 2023 - Thursday


It's pizza and a movie night, but I don't think we'll be really doing it. Jonas will be at drama, Ben will have to leave early to go get him, and we'll have swim lessons...oh, and I will have group! 

Okay, I'm back. I ended up missing group tonight. Ben was feeling super overwhelmed and, although he urged me to still go to group, he was...struggling. So, the appt. with the neurologist didn't go well today. I think we were both hoping for some reassurance or idk something? But what he got was additional worrying news. The doctor is pretty convinced that something serious is happening. He ordered more scans and testing for Ben and wants him in as soon as the brain MRI results are in. Ben, of course, is convinced that he has a cancerous brain tumor. But even if it's not that, if it's actually this trigeminal neuralgia that the docs seem to think it is, it means a life of uncurable pain. So...also not great. He thinks he'd go insane. Here's hoping I blog in a month saying that he hasn't had any pain and it all seems to have resolved itself! 


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